Summary
People who have used health services are often invited to offer their expertise through research, service evaluation, giving patient experience talks or other forms of feedback. This is often referred to as Patient and Public Involvement (PPI). This guidance by Imperial College London and the National Institute for Health and Care Research (NIHR) is intended for healthcare professionals, staff who work in patient experience roles, healthcare organisations, researchers and others who interact with service users and their relatives who are giving insight and feedback through a PPI process. It has evolved from the lead author’s observations when contributing to PPI activities, and the recognition that more needs to be done to create a safe psychological environment to enable people to feel comfortable when contributing and to be involved without harm.
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