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Showing results for tags 'Communication'.
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Content ArticleThis guideline describes good patient experience for babies, children and young people, and makes recommendations on how it can be delivered. It aims to make sure that all babies, children and young people using NHS services have the best possible experience of care. It includes recommendations on: overarching principles of care communication and information planning healthcare consent, privacy and confidentiality advocacy and support improving healthcare experience, including healthcare environments accessibility, continuity and coordination
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Content ArticleThis National Institute for Health and Care Excellence (NICE) guideline covers the components of a good patient experience. It aims to make sure that all adults using NHS services have the best possible experience of care. It includes recommendations on: knowing the patient as an individual. essential requirements of care. tailoring healthcare services for each patient. continuity of care and relationships. enabling patients to actively participate in their care, including communication and information.
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Content Article
Blog - Positivity in adversity (24 October 2022)
Patient-Safety-Learning posted an article in Patient stories
Matt Eagles was only seven when he was diagnosed with Parkinson's disease. Now an adult, Matt uses his experiences of healthcare, to help other patients learn how to better communicate with healthcare professionals. In this blog, he talks about his experiences of living with Parkinson's and the work he does to raise awareness of the condition.- Posted
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- Parkinsons disease
- Children and Young People
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Content Article
Considering Valproate video (February 2022)
Patient-Safety-Learning posted an article in Medication
Sodium valproate is a medication used to treat epilepsy, bipolar disorder and migraines, but it can cause birth defects, learning disabilities and developmental problems in babies if taken during pregmamcy. This video by Central and North West London NHS Foundation Trust discusses the various effects of using valproate, including the potential harmful effects the medication can have on unborn foetuses. It features a conversation between a pharmacist and patient discussing the need for a valproate pregnancy prevention programme if the patient is to be prescribed valproate.- Posted
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Content ArticleThere are over 850 Freedom to Speak Up guardians in NHS primary and secondary care and independent sector organisations, national bodies and elsewhere who work to ensure workers can speak up about any issues which have an impact on their ability to do their job. For Speak Up month, the National Guardian Office find out more about the people behind the role in the 'Stuck in a lift' interviews.
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- Speaking up
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Content ArticleThis series of short articles by the Nuffield Trust looks at common criticisms of the NHS, and provides evidence as to why they are untrue. The articles look at the following four interrelated arguments: We already spend too much on our health and despite this our outcomes are poor The NHS is a ‘sacred cow’ and has not been reformed We should copy other countries and adopt a social insurance model There is not enough use of competition and choice
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EventuntilThis winter The Patients Association is bringing patients, carers and healthcare professionals together to talk about patient partnership. Join the following speakers to hear some great examples of shared decision making: Aimee Robson, Deputy Director, Personalised Care, NHS England, & Duvie Dafinone, Patient and Public Voice Partner, on decision support tools launched this summer to support shared decision making. Dr Sam Finnikin, GP, Sutton Coldfield and clinical research fellow, University of Birmingham, on Our Health – Our Knowledge, a new resource designed to help people who are thinking about choices in healthcare. Register for this online event
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Event
Shared decision making workshop
Patient-Safety-Learning posted an event in Community Calendar
untilThis online workshop will be co-hosted by the General Osteopathic Council and the Collaborating Centre for Values Based Practice, St Catherine's College, Oxford. It will explore the benefits and importance of shared decision making to both practitioners and patients as well as the challenges in making shared decision making a reality in consultations. It will also introduce a range of resources co-produced with patients and health practitioners to help patients and clinicians to express what is important to them in a consultation. Speakers include: Rachel Power, Chief Executive of the Patients Association Professor Ashok Handa, and Professor Bill Fulford, Co-Directors of the Collaborating Centre for Values Based Practice Register for the workshop- Posted
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Content ArticlePatient lead users can be defined as patients or relatives who use their knowledge and experience to improve their own or a relative’s care situation and/or the healthcare system, and who are active beyond what is usually expected. This study in the BMJ Open aimed to explore patient lead users’ experiences and engagement during the early Covid-19 pandemic in Sweden, from 1 June to 14 September 2020. The authors recruited 10 patient lead users living with different long-term conditions and undertook qualitative in-depth interviews with each of them. They found that health systems were not able to fully acknowledge and engage with the resource of patient lead users during the pandemic, event though they could be a valuable resource as a complementary communication channel.
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Content Article
Patients Included charter
Patient-Safety-Learning posted an article in Patient engagement
The Patients Included charters were created by Lucien Engelen in 2010. Fed up of hearing people talk about 'what the patient wants' at medical conferences where no patients were present, he decided he would no longer speak at or attend conferences where patients were not speaking, offered bursaries to attend or part of the organising committee. The charters provide organisations with a way to demonstrate their commitment to incorporating the experience and insight of patients into their organisations by ensuring that they are neither excluded nor exploited. The charters that have been published so far include: Conferences (v.1.0 May 2015) Journals (v.1.0 April 2016) Patient information resources (v.1.0 December 2016) Ethics (v.1.0 April 2018) The Patients Included logo can also be used by conferences who adopt the conference charter.- Posted
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Content ArticleThe failure to consider the needs of diverse groups of people badly impacts experience of care. Sarah Sweeney, Head of Policy at National Voices points out how the NHS needs to change the way it communicates with people regarding care.
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Content ArticleThe Medicines and Healthcare products Regulatory Agency (MHRA) is reviewing its approach to engagement with healthcare professionals to improve the safety of medicines and medical devices. It wants to ensure that healthcare professionals are receiving actionable information and guidance on safe use of medicines and medical devices that they can take into their working practice, providing timely advice to patients. The MHRA wants to hear from you to enable them to transform how they communicate with you and how they work together with you for the common goal of greater patient safety. The consultation closes 18 January 2023.
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Content ArticleSafety communication refers to the sharing of safety information within organisations in order to mitigate hazards and improve risk management. External stakeholders, such as patients and carers, also communicate safety information to healthcare organisations. This article in the Journal of Risk Research examines the nature of safety communication behaviours seen in patients and their families by identifying and examining 410 narrative accounts. The author found that the success of patient and family safety communication in reducing risk was variable. Problems in hospital safety culture such as high workloads and downplaying safety problems, meant that information provided was often not acted upon.
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EventuntilThis webinar from The Yorkshire Quality and Safety Research Group explores a recent research study into how vulnerable patients are able to contribute to their safety. Over the last decade a wealth of studies have explored the way that patients are involved in patient safety internationally. Most begin from the premise that patients can and should take on the role of identifying and reporting safety concerns. Most give little attention, however, to the impact of the patient’s health status and vulnerability on their ability to participate in their safety. Drawing on qualitative interviews with 28 acute medical patients, this article aims to demonstrate how patients’ contributions to their safety in the acute medical context are less about involvement as a deliberate intervention, and more about how patients manage their own vulnerability in their interactions with staff. Our analysis is underpinned by theories of vulnerability and risk. This enables us to provide a deeper understanding of the ways vulnerability shapes patients’ involvement in their safety. Acute medical patients engage in reassurance-seeking, relational and vigilance work to manage their vulnerability. Patients undertake reassurance seeking to obtain evidence that they can trust the organisation and the professionals who work in it and relational and vigilance work to manage the vulnerability associated with dependence on others and the unpredictability of their status as acute medical patients. We argue that patients are involved in the process of creating patient safety at the point of care. Foregrounding the theory of vulnerability and its relationship to risk offers new insights into the potentials and limits of patient involvement in patient safety in the acute care context. Liz Sutton is a Research Associate in the Social Science Applied to Healthcare Improvement Research (SAPPHIRE) Group, Department of Health Sciences, University of Leicester. She has considerable expertise in qualitative research including: qualitative interviewing, focus group facilitation and ethnography. Her ethnographic projects have been conducted in different settings including hospital acute care and in care homes, where she has explored such issues as the quality and safety of care and how context affects antibiotic prescribing. Her PhD research explored how vulnerability affects patient involvement in patient safety. Her other interests include dementia care, healthcare quality improvement and health inequalities. Register for the webinar
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Content ArticlePatients are increasingly feeding back about their healthcare experiences online and NHS Trusts are adopting different approaches to responding. This study in the journal Digital health aimed to explore the sociocultural contexts underpinning three organisations who adopted different approaches to responding to online patient feedback. The authors identified a range of barriers facing organisations who ignore or provide generic responses to patient feedback online and demonstrated the sociocultural context in which online interactions between staff and patients can be used to inform improvement. However, they highlight that this represented a slow and difficult organisational journey.
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- Feedback
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Content ArticleAccess useful case studies as well as the NHS Confederation's latest reports, blogs, podcasts and the ICS Communications Toolkit.
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- Integrated Care System (ICS)
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Content Article
Raising awareness of surgical menopause
Anonymous posted an article in Women's health
World Menopause Day is held every year on 18 October to raise awareness of the menopause and the support options available for improving health and wellbeing. In this blog, I want to raise awareness of surgical menopause, which affects over 4000 young women a year, specifically around the lack of information and support received before and after surgery.- Posted
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- Menopause
- Surgery - Obs & Gynae
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Content Article
Pausitivity - Know your menopause poster
Patient-Safety-Learning posted an article in Women's health
This simple poster highlights the main symptoms of the menopause including hot flushes. headaches, mood swings, palpitations and tiredness. It encourages women to recognise the symptoms and seek help from their GP.- Posted
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- Menopause
- Information sharing
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News Article
Eating disorders: Toolkit to help schools cope developed
Patient Safety Learning posted a news article in News
Mental health professionals have unveiled a "toolkit" to help school nurses support pupils with eating disorders. Bath-based campaigner Hope Virgo developed the strategy with the School and Public Health Nurses Association (Saphna) after a rise in cases. The toolkit aims to equip school nurses with techniques to discuss eating disorders, and also "what not to say". Ms Virgo has called on the government to deal with the backlog those waiting for treatment, which totalled 1,946 at the beginning of March, data from eating disorder charity Beat shows. Sharon White, Saphna's chair, said the organisation had been promoting the toolkit among its members. "We can't solve the huge waiting lists and reduced services, but what we can do is inform ourselves better," she said. The toolkit provides "the hints, the tips, the language, the stock phrases, and importantly, what not to say", Ms White added. The Department of Health and Social Care has been supportive of the scheme, Ms White said, adding it may adopt it as part of its own guidance in future. Read full story Source: BBC News, 17 October 2022 Read a recent blog Hope Virgo wrote for the hub: People with eating disorders should not face stigma in the health system and barriers to accessing support in 2022- Posted
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- Eating disorder
- Children and Young People
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Content ArticleThis webpage has been put together by The Patients Association to provide resources for patients and members of the public who want to start a local campaign about a specific issue related to health and social care. It includes: advice on how to campaign. information on who you should contact. template letters to MPs and other officials.
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Content ArticleIn January 2023, The Patients Association celebrates its 60th anniversary. In this interview, CEO Rachel Power talks about why The Patients Association was set up and how the organisation still aims to ensure that everyone can access and benefit from the health and care they need to live well. She describes the benefits of shifting to free membership, how patient partnership is vital to improving health and care services and The Patients Association's role in highlighting the key issues facing patients to the Government. She also highlights the key role that pharmacies play in promoting health information and delivering services to the communities they serve.
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- Patient engagement
- Communication
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Content ArticleThis guide by the charity Menopause Support offers advice for women who may be experiencing menopause symptoms about how to approach an appointment with their GP. It covers preparing for the appointment with research, making a note of your symptoms, how to ask questions, taking a friend or family member to support you, and further support you can request during the consultation.
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- Womens health
- Menopause
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Content ArticleThe journalist Merope Mills voices her anger at her daughter Martha's preventable death in this Woman's Hour programme.
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- Patient / family involvement
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Content ArticleTransitions of care between hospital departments are necessary, but they may disrupt care coordination, such as discharge planning. Family carers often serve as liaisons between the patient and healthcare professionals, but they frequently experience exclusion from care planning during intrahospital transfers (IHTs). This has the potential to decrease their awareness of patients’ clinical status, postdischarge needs and carer preparation. This study aimed to explore family carers’ perceptions about IHTs, patient and carer ratings of patient discharge readiness and carer self-perception of preparation to engage in at home care.
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- Discharge
- Transfer of care
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Content Article
Mother knows best – a blog by Dr Abha Agrawal
Patient Safety Learning posted an article in Patient stories
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- Patient / family involvement
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