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Found 1,311 results
  1. Content Article
    This survey by In-FACT (Independent Fetal Anti Convulsant Trust) is intended to provide patients, no matter what anti-epileptic drug (AED) they are prescribed or what condition the AED is prescribed for, the opportunity to report problems and worries about taking their medication during pregnancy. The results will be used to inform In-FACT's ongoing work to improve medication safety and their engagement with the Medicines and Healthcare products Regulatory Agency (MHRA).
  2. Content Article
    The aim of integrated care is to improve people’s outcomes and experiences of care by bringing services together around people and communities. This means addressing the fragmentation of services and lack of co-ordination that people often experience by providing person-centred, joined-up care. This practical guide aims to provide partners working in integrated care systems (ICSs) with ideas on how they can ensure they identify and meet the needs of the people they serve.
  3. Content Article
    Always Events are defined as “those aspects of the patient and family experience that should always occur when patients interact with healthcare professionals and the health care delivery system”. NHS England has been leading an initiative for developing, implementing, and spreading an approach to reliably integrate Always Events into routine frontline services. Always Events® is a co-production quality improvement methodology which seeks to understand what really matters to patients, people who use services, their families and carers and then co-design changes to improve experience of care. Genuine partnerships between patients, service users, care providers, and clinicians are the foundation for co-designing and implementing reliable solutions that transform care experiences with the goal being an “Always Experience.” This webpage contains: information on the Always Events national programme Always Events toolkit Evaluation of Always Events Always Events film
  4. Content Article
    This National Institute for Health and Care Excellence (NICE) guideline covers the components of a good patient experience. It aims to make sure that all adults using NHS services have the best possible experience of care. It includes recommendations on: knowing the patient as an individual. essential requirements of care. tailoring healthcare services for each patient. continuity of care and relationships. enabling patients to actively participate in their care, including communication and information.
  5. Content Article
    This guide is aimed at policymakers and communicators whose efforts may be frustrated by false narratives and misinformation. In healthcare, that can apply to important issues such as vaccination and mask-wearing, as well as to spurious 'cures' for serious illnesses. But the techniques explored in the guide can also apply to more day-to-day matters such as handwashing in healthcare settings. The starting point is the 'wall of beliefs' - the various influences from which we construct our belief systems, and, to some extent, our personal identities. The point here is that belief is not simply built on facts. It also comes from social conventions, peer pressure, religious faith and more. The guide offers a strategy matrix, based on understanding how strongly or weakly beliefs are held, and whether the resulting behaviour is harmful or not. A corresponding set of tactics looks at incentives and barriers for desired behaviour, along with communications that can address harmful beliefs without backing the intended audience into a corner.
  6. Content Article
    The REACH Toolkit provides information, resources and quality improvement (QI) tools for managers and clinicians to improve patient, carer and family recognition and escalation of clinical deterioration in NSW health services. The resources can be adapted to suit local needs including initial program implementation, to review and improve current practices or to support current practice.
  7. Content Article
    REACH is a system that helps patients, carers and family members to escalate their concerns with staff about worrying changes in a patient's condition. It stands for Recognise, Engage, Act, Call, Help is on its way. REACH was developed by the New South Wales Government Clinical Excellence Commission in collaboration with local health districts and consumers. It builds on the surf life‐saving analogy for recognition and appropriate care of deteriorating patients by encouraging patients, carers and their families to 'put their hands in the air' to signal they need help.
  8. Content Article
    With a single drug in the UK currently costing £340,000 per patient per year, or a gene therapy in the USA being costed at $1.2million, who should get such treatments, and how can we begin to afford them? Should we all be entitled to timely mental health therapy? How should we care for our old? As we grapple with the world's worst pandemic for a century, our minds are on our health more than ever. But what should we rightfully expect of doctors? In this original and thought-provoking book, t. Informed by patient stories and data from across the world - from US big pharma to Britain's NHS - this is an urgent and often moving examination of our most important asset: our health.
  9. Content Article
    For specialist treatment, Palestinians often need to be referred to a hospital outside Gaza – then apply for a travel permit. Tight budgets and restrictions mean few are granted. Int this Guardian article, one woman details the obstacles she has faced.
  10. Content Article
    Medical records include any information about your physical or mental health recorded by a healthcare professional. This includes hospital staff, GPs, dentists and opticians. This page on The Patients Association website explains how to get copies of your medical records in England and Wales. It provides information on: How to get your GP records Using the NHS App to access records A guide to formally requesting medical records Requesting the records of someone who has died Seeing a child’s medical records Requesting the records of a vulnerable adult More information on medical records Complaints
  11. Content Article
    Mike Fell, executive director of national cybersecurity operations at NHS Digital,, discusses the WannaCry cyberattack, teaching GP surgeries to up their game and how data can save lives.
  12. Content Article
    In this Health Foundation blog, senior data analyst Anne Alarilla looks at what the organisation has learned from involving patients and the public in its analytical projects. Patient and public involvement and engagement (PPIE) in research allows patients and the public to be involved in decisions about what an organisation does and how it interprets and communicates analysis. It means that research is carried out in line with the ethical principle of ‘nothing about us, without us’. In the blog, Anne outlines four key lessons: If you’re new to this, work with experienced PPIE practitioners Incorporate lived experiences when developing and refining analysis plans Ensure the people you engage with understand what you’ll do with the findings Make the findings relevant to patients and the public
  13. Content Article
    This series of videos produced by pharmaceutical company BD features patients, caregivers and healthcare professionals telling their stories about patient safety. Each video highlights an experience of avoidable harm, with topics including sepsis, antimicrobial resistance, medication errors and healthcare associated infections.
  14. Content Article
    World Physiotherapy is the international voice for physiotherapy, representing more than 685,000 physiotherapists worldwide, through 125 member organisations. Recognising the lack of good quality evidence relating to Long Covid and physical activity, this briefing paper aims to support healthcare professionals to provide safe and effective Long Covid rehabilitation practice, research and policy. It recommends screening for post-exertional symptom exacerbation (PACS), cardiac impairment, exertional oxygen desaturation and autonomic dysfunction before exercise is recommended to people with symptoms of Long Covid.
  15. Content Article
    The Stroke Association's Saving Brains campaign aims to raise awareness of thrombectomy, a game-changing surgical treatment for stroke that many patients in the UK are currently missing out on. Thrombectomy can prevent further damage occurring to the brain in people having a stroke. It is a time-critical treatment and there is variation in access to the procedure across the country, In this video, stroke patients Karen and Phil talk about their experiences of treatment. Karen was able to have a timely thrombectomy and regained full mobility immediately following the procedure. Phil wasn't able to access thrombectomy due to the service not being available in his area at weekends; as a result, his recovery has been slower and more difficult.
  16. Content Article
    In this article for The Times, Deborah Ross describes her negative experience of NHS maternity care during and after labour, and how this has put her off having more children. During her 72-hour labour and subsequent hospital admission, she was denied pain relief, did not feel listened to and was not informed as to why her baby had been transferred to NICU.
  17. Content Article
    The National Quality Board (NQB) has refreshed its Shared Commitment to Quality to support those working in health and care systems. The publication provides a nationally-agreed definition of quality and a vision for how quality can be effectively delivered through ICSs. The refresh has been developed in collaboration with systems and people with lived experience and has a stronger focus on population health and health inequalities. The NQB was set up in 2009 to promote the importance of quality across health and care on behalf of NHS England and Improvement, NHS Digital, the Care Quality Commission, the Office of Health Promotion and Disparities, the National Institute for Health and Care Excellence, Health Education England, the Department of Health and Social Care and Healthwatch England.
  18. Content Article
    The number of people on NHS Wales waiting lists for treatment has reached record levels. This problem has worsened since the Covid-19 pandemic, with the average wait time for treatment more than doubling since December 2019. This report by the Welsh Centre for Public Policy identifies five key areas in which policy could be developed to improve outcomes and reduce waiting times. These areas target the underlying factors causing increased waiting times, and are likely to both improve the overall performance of the health system, and to impact outcomes which matter to patients, resulting in a more patient-centred approach: Workforce capacity Digital technology Reimagining primary care Systems collaboration Follow-up care
  19. Content Article
    Matt Eagles was only seven when he was diagnosed with Parkinson's disease. Now an adult, Matt uses his experiences of healthcare, to help other patients learn how to better communicate with healthcare professionals. In this blog, he talks about his experiences of living with Parkinson's and the work he does to raise awareness of the condition.
  20. Content Article
    We need urgent radical solutions for the crisis in social care, to prevent the collapse not just of the NHS but of the entire UK economy. Social care is facing extreme difficulties with funding and workforce shortages. Staff are poorly paid, and 10% of posts are vacant. The situation is about to get worse: 19% of the UK population is over 65. In Northern Ireland the number of people over 65 more than doubled between the censuses in 2011 and 2021. Projections show that each person will need an average of 10 years of social care. We must, then, focus on prevention. The need for social care is not inevitable. Ageing does not have to be associated with a loss of fitness. Exercise and strength training can restore muscle and balance and are proved to reduce the impact of falls and fractures. 
  21. Content Article
    Recording of the recent All-Party Parliamentary Group (APPG)Coronavirus evidence session on Long Covid.
  22. Content Article
    Evidence suggests that full implementation of the WHO surgical safety checklist across NHS operating theatres is still proving a challenge for many surgical teams. The aim of the current study from Charles Vincent and colleagues was to assess patients’ views of the checklist, which have yet to be considered and could inform its appropriate use, and influence clinical buy-in.
  23. Content Article
    Charlotte Augst, chief executive of National Voices, challenges system leaders to think differently about what is needed to repair the NHS. As next year is likely to be the most difficult people ever had to live through, since NHS’s inception, she urges leaders to stand together
  24. Content Article
    Social prescribing is a way of linking people with complex needs to non-medical supports in the community. There are different models of social prescribing, ranging from online signposting services to individual support from a link worker to access community resource. The aim of this study from Kiely et al. was to establish the evidence base for the effects on health outcomes and costs of social prescribing link workers (non-health or social care professionals who connect people to community resources) for people in community settings focusing on people experiencing multimorbidity and social deprivation. The study found that there is an absence of evidence for social prescribing link workers. Policymakers should note this and support evaluation of current programmes before mainstreaming.
  25. Content Article
    When leaving hospital with medicines, there can be a lot of information to take in. This checklist designed by the Royal College of Physicians (RCP) Quality Improvement and Patient Safety (QIPS) is designed to help patients and their carers use medications safely when they leave hospital. It includes: Questions to consider before you leave hospital Questions to consider when you’ve left hospital Further useful resources Medicines safety and governance pharmacist Jen Flatman has written a blog about how the checklist was developed.
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