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Found 1,234 results
  1. Content Article
    In this blog, Aimee Robson, Deputy Director of Personalised Care at NHS England, talks about how healthcare workers can introduce one simple question into their communication with patients: “What matters to you?” She highlights that facilitating dialogue with patients about their own priorities is the first step in achieving personalised care, a key commitment outlined in the NHS Long Term Plan.
  2. Content Article
    Public satisfaction with the NHS is currently at a 25-year low, and lack of effective communication and engagement with patients has contributed to this dissatisfaction. In this blog, Lucy Watson, Chair, and Rachel Power, Chief Executive of The Patients Association, reflect on the findings of the Ockenden Report and the implications for patient trust in the NHS. They highlight the immense damage to trust caused by the combination of the hospital's substandard clinical care, lack of compassion, tendency to blame mothers and unwillingness to respond to concerns. The authors argue that listening to and better engaging with patients is essential to create the culture change the NHS needs to rebuild public trust and improve safety. They call for honest and transparency about how the NHS is coping, and for more action to tackle low staff morale.
  3. Content Article
    The ladder of co-production describes a series of steps towards full co-production in health and social care. Developed by the National Co-production Advisory Group set up by the organisation Think Local Act Personal, it supports greater understanding of the various steps that need to happen in co-production, such as access, inclusion and consultation. This webpage contains a variety of downloadable resources and a video explaining the ladder of co-production.
  4. Content Article
    This directory from the organisation Think Local Act Personal provides Plain English definitions of jargon commonly used in health and care.
  5. Content Article
    The Perfect Patient Information Journey is Patient Information Forum's long-running project investigating how high-quality information can be provided throughout a person’s journey with a long-term condition.
  6. Content Article
    In this blog, Sarah Tilsed, Head of Patient Partnership at the Patient's Association, reports on an HSJ webinar which discussed how engaging patients could help deal with the NHS care backlog. She talks about the need to involve patients in ways that make them feel supported and in control, and highlights the importance of better communication with patients to improve care.
  7. Content Article
    This Virtual Patient programme for healthcare professionals allows users to specify an environment, patient and therapeutic area to create a ‘case’ to practise and hone clinical and communications skills.
  8. Content Article
    This review in Medical Decision Making looks at how healthcare organisations might successfully use patient decision aids (PtDAs) to support person-centred care. It aimed to develop context-specific program theories that explain why and how PtDAs are successfully implemented in routine healthcare settings. Based on the results of their review, the authors recommend the following strategies for organisations wishing to embed PtDAs: Co-production of PtDA content and processes (or local adaptation) Training the entire team Preparing and prompting patients to engage, Ensuring senior-level buy-in Measuring to improve
  9. Content Article
    This editorial in the Journal of Patient Safety & Risk Management discusses the significant role patients and their families can have in improving patient safety. The author argues that having a patient present shifts the conversation to the patient perspective, results in a kinder and more respectful tone and promotes a greater urgency to find solutions. He describes patient engagement and empowerment as "perhaps the most powerful tool to improve patient safety" and discusses the significance of the World Health Organization's Patients for Patient Safety program (PFPS).
  10. Content Article
    The Medicines & Healthcare products Regulatory Agency (MHRA)'s first 'Patient Involvement Strategy' sets out how they will engage and involve the public and patients at each stage of the regulatory journey. The MHRA involved patients throughout the process of developing this strategy and carried out a final public consultation before it was published. The strategy identifies five priority areas for the MHRA: Patient and public involvement Responsiveness Internal culture Measuring outcomes Partnerships.
  11. Content Article
    Fraser Gilmore, Head of Scotland at Care Opinion, outlines the highlights of the 'Annual Review of Stories told on Care Opinion about NHS Boards in Scotland during 2020/21'. He describes an increase in patient feedback and highlights the success of Care Opinion Scotland's online events, including their first conference.
  12. Content Article
    This Annual Review contains data and infographics about patient and staff engagement with Care Opinion at 17 NHS boards in Scotland between April 2020 and March 2021. The theme of the review is 'Communication, connectivity and relationships' and it notes that use of online communication has become more widespread as a result of the COVID-19 pandemic, a factor which has contributed to increases in online patient feedback.
  13. Content Article
    This 1-page infographic makes the case for the development of health literate information. It sets out the average UK skills for literacy and numeracy, the impact this has on health and what information producers can do to develop information that works for everyone. The principles for development echo the PIF TICK criteria. They can be applied to all health information, in all formats whatever the topic – from vaccines to verruca. The infographic has been designed in response to member demand. It makes the case that health literate information is not 'dumbed down', rather it helps level up. 
  14. Content Article
    Patients are commonly given written information, for example in the form of leaflets; however, they often do not retain it and poor literacy is a barrier for many. To address this, working in partnership with a local university, a pre-operative assessment unit designed and developed video animations for patients to illustrate preparation for surgery. The aim was to enhance the accessibility and retention of information to improve patient safety and experience.
  15. Content Article
    Health literacy is a person’s ability to find, understand, and use information and services to inform health-related decisions and actions. Not surprisingly, many Americans do not have levels of health literacy that allow them to truly understand their care or take appropriate actions to improve their health. According to the Centers for Disease Control and Prevention (CDC), 9 out of 10 adults have difficulty understanding health information when it is complex or unfamiliar. In this blog, Regina Hoffman, Executive Director of Pennsylvania’s Patient Safety Authority, outlines the steps your organisation can take to fulfill its role in closing the gap on health literacy.
  16. Content Article
    These patient leaflets, shared on the BMJ Bets Practice website, aim to provide concise easy to read summaries to reassure patients and carers and help them make informed, shared decisions with healthcare professionals. Search their library of leaflets by condition or treatment by clicking on the link below.
  17. Content Article
    This online tool, from the Patient Experience Library, allows you to search by condition and treatment to access information on waiting times at NHS Trusts in England. This data is sourced from NHS England, and is published two months in arrears.
  18. Content Article
    Patient Information Forum (PIF) have launched a new website to help people find trusted health information. The PIF TICK website allows members of the public to see which organisations have the PIF TICK – the UK quality mark for health information – and offers advice on how to find trust health information.
  19. Content Article
    In this webinar recording, Gill Phillips, founder of the Whose Shoes? approach to co-production, talks about: Building the future using virtual Whose Shoes? The power of poems, with some thought-provoking and entertaining examples and crowdsourced audio Bridging the gaps between what services provide and what people actually want Health inequalities and talking to people to understand and address the real issues People disproportionately affected by the pandemic and live crowdsourcing of 'micro first steps support' Using common purpose to smash the rules, where necessary Unhelpful NHS language Whose Shoes? is being used as a quality improvement approach in over 80 NHS trusts and many other organisations.
  20. Content Article
    This study in the International Journal of Nursing Studies looked at the role of primary care nurses in coaching patients in shared decision making about their treatment. It evaluated an approach to support nurses in coaching patients, which was found to have a positive impact overall. Nurses became more aware of their own attitudes and learning needs and reported more in-depth discussions with patients. However, nurses struggled to integrate the approach in routine care and highlighted the need to receive support from their practice to implement the new approach.
  21. Content Article
    This article in The Primary Care Companion for CNS Disorders looks at the impact of the doctor-patient relationship on patient outcomes. It highlights issues that can arise in this relationship, looks at their causes and suggests potential solutions.
  22. Content Article
    This study in AIDS and Behavior looked at patient-provider communication in HIV care and the role of shared decision making in improving health outcomes. The authors found that good quality engagement between patients and their healthcare providers was associated with better health-related outcomes. A substantial proportion of patients did not report having good quality engagement and this was associated with significantly poorer outcomes.
  23. Content Article
    This report by The Patients Association is based on information gathered from more than 1,000 patients in a survey carried out in December 2021, just before the omicron wave of the Covid-19 pandemic hit the UK. The results of the survey highlight that patients found it hard to access care during this period, with pressures affecting the NHS compromising their care. They also show that the worst affected patients were those whose illness or care needs seriously affect their day-to-day lives.
  24. Content Article
    World Patients Alliance is the umbrella organisation of patients and patients’ organisations around the globe. They seek to ensure that all patients have access to safe, high quality, and affordable healthcare everywhere in the world. These videos produced by World Patients Alliance provide information for patients on the following topics: How do you talk to your healthcare provider? An introduction to medication safety How many medications are too many?
  25. Content Article
    This study, published by Applied Ergonomics, found that employing user experience design (UXD) could help to improve health education materials. Researchers looked at printed information about breast and cervical cancer screening and its perceived usability. 
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