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Showing results for tags 'Communication'.
Found 1,234 results
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Content ArticlePrimary care services are the front door to the NHS - they are the first port of call when we feel unwell and the main coordinator of care when we are living with health conditions. The primary care team have an important role in making people feel welcomed, listened to and taken seriously. Yet we often hear examples about people who have not had their communication needs met within primary care. This includes people with sensory impairments, people with learning disabilities, autistic people, people living with dementia, people who don’t speak English fluently, people with low or no literacy, people who are digitally excluded, people living nomadically, people experiencing homelessness and many others. This report sets out the key issues faced by people with specific communication needs within primary care and what they feel would make the biggest difference, as well as key actions primary care leaders and teams can take to support inclusive communication.
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Content ArticleIn this blog Suzanne Rastrick, Chief Allied Health Professions Officer (England) and Rob Moriarty, Personalised Care Strategic Coproduction Group and Peer Leader at NHS England, share the importance of asking the simple question ‘What matters to you?’
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Content ArticleIn this blog, Becki Meakin, Involvement Manager with Shaping Our Lives, a non-profit making user-led organisation that enables individuals to have a stronger voice, writes about why all patients should think about speaking up about their health experiences. She talks about the difference sharing your story can make, and how to get started.
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Content ArticleIn this BMJ opinion piece, Consultant Orthopaedic surgeon Scarlett McNally writes about the need for a new approach to preventing long-term conditions and providing healthcare for patients with multiple conditions. She highlights the importance of Government policy in promoting healthier lifestyle choices and improving patient engagement in shared decision making. She also outlines the importance of retaining healthcare professionals with expertise in managing risk and complexity in patients with multiple morbidity.
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Content ArticleShared decision making involves ensuring patients are able to contribute meaningfully to decisions about their care. Healthcare professionals ensure patients are informed of the options available to them and fully involve patients in making treatment decisions. This report by the Patients Association sets out the views of 1,416 healthcare professionals on shared decision making, expressed in an online survey in Spring 2022. Respondents included GPs, consultants, specialist nurses and practice nurses. The survey found that most healthcare professionals are positive about shared decision making, but feel their ability to practice it regularly is limited by the current situation in the NHS. Many said that lack of time, gaps in the workforce and large caseloads prevented them partnering with patients to make decisions about treatment and care together.
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Content ArticleFinding out a patient's perspective about their care and treatment is a key part of shared decision making, but healthcare professionals do not always proactively do this in practice. This scoping review in the journal Patient Education and Counselling explored the extent to which the personal perspectives of patients are drawn out by clinicians during a consultation, as part of a shared decision making process. It reviewed studies in five databases about shared decision making. The authors found that studies reported low levels of healthcare professionals eliciting patient perspectives, The majority of content healthcare professionals and patients discussed related to physical health, with social and psychological topics mostly unaddressed.
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Content ArticleThe Patient Information Forum (PIF) has launched an update to the UK’s only assessed quality mark for print and digital health and care information. The update places a greater emphasis on inclusion and reflects the huge evolution in health and care information since the PIF TICK was launched in 2020.
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Content ArticleThis video introduces the SingHealth Patient Advocacy Network (SPAN), a patient-led collaborative that encourages patients and caregivers to be actively involved in their care. SPAN is co-chaired by two patients and aims to rethink traditional models of care. The network wants to improve the quality and design of healthcare so that it encompasses the needs and desires of patients and their caregivers.
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Content ArticleIn this blog, Sarah Tilsed, Head of Patient Partnership at The Patients Association, gives an update on recent themes discussed by the Patients Association's Patient Voices Matter (PVM) panel, including complaints, counselling and the accessibility of NHS communications. PVM is a lived-experience advisory panel set up to discuss how things can be improved in the NHS for all patients. Sarah has written a range of other blog posts about PVM that can also be read on The Patients Association's website.
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Content Article
In this opinion piece, Kath Sansom, Founder of the Sling the Mesh Campaign, argues that when health services fail to engage meaningfully with patients it causes patient safety issues. Drawing on her own experience as a patient and the founder of a large patient support group, she talks about the invaluable perspective that patients who have experienced healthcare harm can offer policymakers. She also explains why it is important to hear from a wide group of patients who have experienced a variety of issues.- Posted
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Content ArticleThis report by pharmaceutical company ViiV Healthcare focuses on results from wave two of their Positive Perspectives study. It investigates how people living with HIV (PLHIV) rate their own health and how living with HIV impacts their lives and affects their outlook for the future. It also examines their interactions and relationships with healthcare professionals and their experiences with antiretroviral treatment. The report highlights the importance of open and active dialogue and shared decision making between PLHIV and their healthcare professionals in improving outcomes.
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Content ArticleHappy Patient is a three-year project co-funded by the European Union, that seeks to reduce the impact of antimicrobial resistance (AMR) by decreasing the inappropriate use of antibiotics for the management of common community-acquired infection. Up to 25,000 people die every year in Europe as a direct consequence of the misuse of antibiotics, a figure that rises up to 30,000 in the United States (European Centre for Disease Prevention and Control). The Happy Patient Website offers a variety of communication tools for healthcare professionals and patients, including: Leaflet - Viruses or bacteria: What caused your infection? Urinary tract infections: A leaflet for older adults and their families Antibiotics prescription pad 5 myths about urinary tract infections (UTIs) in nursing home residents What you need to know if you have been prescribed an antibiotic
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Content ArticleWith patients increasingly being able to view their healthcare records online or via an app, it is very important that they understand what their records say. This webpage by the NHS explains what some of the most common medical abbreviations mean, to help patients understand what has been written about their care and treatment.
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Content ArticleThis cross-sectional study in BMJ Quality & Safety aimed to assess patient comfort in speaking up about problems during hospitalisation, and to identify patients at increased risk of having a problem and not feeling comfortable speaking up. The authors assessed the responses of 10,212 patients at eight hospitals in Maryland and Washington to the question, "How often did you feel comfortable speaking up if you had any problems in your care?" The study found that 48.6% of respondents indicated that they had experienced a problem during hospitalisation. Of these, 1,514 (30.5%) did not always feel comfortable speaking up. The authors concluded that creating conditions for patients to be comfortable speaking up may result in service recovery opportunities and improved patient experience.
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Content ArticleWe put a lot of trust in the medical profession. We are usually going to the doctor at our most vulnerable—when we don’t feel well, something is wrong, and we need help. It can be a frightening experience that can become a frustrating or even dangerous one when medical concerns are minimized or dismissed. However, there are steps patients can take to advocate for themselves in a medical setting to reduce the risk of medical gaslighting.
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Content ArticleThe non-profit Patient Information Forum (PIF) has published a new one-page guide to Body Mass Index (BMI). The poster was developed following user engagement sessions with patients and healthcare professionals which highlighted the amount of misinformation surrounding BMI. It is free to download and share and can be used directly by patients or a resource for healthcare professionals. Welcoming the publication of 'BMI – What you need to know', Dr Juhi Tandon said: “As a GP for more than a decade, I still struggle to have the BMI conversation with patients. Discussing someone’s BMI can easily make them feel uncomfortable as they feel like they are being judged. It will be very helpful to share a clear fact sheet to help patients understand more about BMI in a non-judgemental way.”
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Content ArticleIn spring 2021, YouTube asked the National Academy of Medicine to bring together experts to develop principles for elevating credible health information online. In this interview with The Commonwealth Fund, Garth Graham, YouTube’s director and global head of health care and public health partnerships talks about how YouTube—which reaches two billion people each month—has been working with health systems in the US to create high-quality, engaging health content.
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Content ArticleThe Accessible Information Standard is a set of principles for the presenting, sharing and discussing information with patients. It aims to make sure that people who have a disability, impairment or sensory loss get information that they can access and understand, and any communication support that they need from health and care services.
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Content Article
The Beryl Institute - Defining patient experience
Patient-Safety-Learning posted an article in Patient engagement
The Beryl Institute formed a working group of patient experience leaders from a variety of healthcare organisations to develop its definition of patient experience. The group shared perspectives, insights and backgrounds on what patient experience means to them and collaboratively created a definition, which is described in this video. -
Content ArticleThis information sheet produced by South Australia Health's Safety and Quality Unit describes how patients and staff can work together to make sure that if clinical deterioration occurs, it will be acted upon in a timely and effective manner. The information also applies to carers, family members, friends or the patient’s appointed responsible person. It includes information relating to deterioration during an emergency department visit or hospital stay, and at and after discharge.
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Content ArticlePatients are increasingly feeding back about their healthcare experiences online and NHS Trusts are adopting different approaches to responding. This study in the journal Digital health aimed to explore the sociocultural contexts underpinning three organisations who adopted different approaches to responding to online patient feedback. The authors identified a range of barriers facing organisations who ignore or provide generic responses to patient feedback online and demonstrated the sociocultural context in which online interactions between staff and patients can be used to inform improvement. However, they highlight that this represented a slow and difficult organisational journey.
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Content Article
Patients Included charter
Patient-Safety-Learning posted an article in Patient engagement
The Patients Included charters were created by Lucien Engelen in 2010. Fed up of hearing people talk about 'what the patient wants' at medical conferences where no patients were present, he decided he would no longer speak at or attend conferences where patients were not speaking, offered bursaries to attend or part of the organising committee. The charters provide organisations with a way to demonstrate their commitment to incorporating the experience and insight of patients into their organisations by ensuring that they are neither excluded nor exploited. The charters that have been published so far include: Conferences (v.1.0 May 2015) Journals (v.1.0 April 2016) Patient information resources (v.1.0 December 2016) Ethics (v.1.0 April 2018) The Patients Included logo can also be used by conferences who adopt the conference charter. -
Content ArticleSafety communication refers to the sharing of safety information within organisations in order to mitigate hazards and improve risk management. External stakeholders, such as patients and carers, also communicate safety information to healthcare organisations. This article in the Journal of Risk Research examines the nature of safety communication behaviours seen in patients and their families by identifying and examining 410 narrative accounts. The author found that the success of patient and family safety communication in reducing risk was variable. Problems in hospital safety culture such as high workloads and downplaying safety problems, meant that information provided was often not acted upon.
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Content ArticleIn January 2023, The Patients Association celebrates its 60th anniversary. In this interview, CEO Rachel Power talks about why The Patients Association was set up and how the organisation still aims to ensure that everyone can access and benefit from the health and care they need to live well. She describes the benefits of shifting to free membership, how patient partnership is vital to improving health and care services and The Patients Association's role in highlighting the key issues facing patients to the Government. She also highlights the key role that pharmacies play in promoting health information and delivering services to the communities they serve.
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Content ArticleOur Health Our Knowledge (OHOK) is a short web-based course developed by patients and GPs to help people make healthcare choices. OHOK is available in English and Welsh, is free to use and is backed by the Royal College of General Practitioners, the Welsh Value in Health Centre/Canolfan Gwerth mewn lechyd Cymru, Realistic Medicine and the Academy of Medical Royal Colleges.
