Search the hub
Showing results for tags 'Information sharing'.
Found 337 results
-
Content Article
The Patient Safety Management Network (PSMN) started on a Friday afternoon in June 2021 as three people in a Zoom meeting. In this interview, PSMN founder Claire Cox reflects on why the network has grown to have over 1600 members and what it has achieved over the past three years. She outlines how the network has fostered a safe space for staff to raise issues and shares feedback from members about what they love about the PSMN.- Posted
- 1 comment
-
1
-
- (and 6 more)
-
News Article
Hacked UK trove includes data on newborns, cancer patients...
Patient Safety Learning posted a news article in News
Hackers behind a London hospital attack recently published records that include personal information about pregnant women, newborns, cancer patients, people suffering from schizophrenia and thousands of others across the UK and Ireland, revealing the breach was far more widespread than authorities have previously indicated. An analysis of the data trove by Bloomberg News found that it contains tens of thousands of medical records on patients from more than 400 public and private hospitals and clinics. Among the records are some 40,000 highly sensitive documents sent by doctors requesting biopsies and blood tests for individual patients in all regions of the UK and some hospitals in Ireland. A breach of the kind faced by Synnovis was inevitable, according to Saif Abed, a former NHS doctor and expert in cybersecurity and public health. “The NHS has some of best patient safety and cybersecurity standards in the world,” Abed said. “They are just immensely poorly enforced.” Abed said that there was a lack of mandatory cybersecurity audits on any contractors providing services to the NHS, which meant those contractors could have substandard cybersecurity practices that could in turn leave the NHS vulnerable. Read full story Source: Bloomberg UK, 26 June 2024 -
Content ArticleBeta-lactamases are enzymes produced by some bacteria that may make them resistant to some antibiotics. Extended Spectrum Beta-Lactamase (ESBL) production is associated with a bacteria usually found in the bowel. ESBL bacteria can be present in the bowel of individuals without their knowledge and may survive there harmlessly until the person becomes ill or requires antibiotic therapy. This information leaflet from the Northern Ireland Public Health Agency explains who is at risk of being infected with an ESBL-producing bacteria, how to reduce transmission and how EBSL infection is treated.
-
News Article
NHS confirms patient data stolen in cyber attack
Patient Safety Learning posted a news article in News
NHS England has confirmed its patient data managed by blood test management organisation Synnovis was stolen in a ransomware attack on 3 June. Qilin, a Russian cyber-criminal group, shared almost 400GB of private information on their darknet site on Thursday night, something they threatened to do in order to extort money from Synnovis. In a statement, NHS England said there is "no evidence" that test results have been published, but that "investigations are ongoing". More than 3,000 hospital and GP appointments were disrupted by the attack. "Patients should continue to attend their appointments unless they have been told otherwise and should access urgent care as they usually would," NHS England said. A sample of the stolen data seen by the BBC includes patient names, dates of birth, NHS numbers and descriptions of blood tests, something cyber security expert Ciaran Martin told the BBC was "one of the most significant and harmful cyber attacks ever in the UK." Read full story Source: BBC News, 24 June 2024 -
Content Article
In this blog, patient advocate and healthcare communications consultant, Tambre Leighn, summarises her poster, Ask Me! Transforming Patient Communication to Improve Enrolment & Adherence in Clinical Trials and Cancer Care, presented at this year's American Association of Cancer Researchers conference. Tambre discusses how effective communication is essential for ensuring patient safety in clinical trials and cancer care, and why poor communication can lead to negative outcomes. She shares her strategies to improve patient safety through communication. -
Content Article
The digitalising of patient records — why patients MUST be involved
Anonymous posted an article in Health records and plans
In this blog, Tina* discusses the patient safety issues that can occur with electronic patient records, highlighting how easily errors can occur in a patient's record but how difficult they are to fix, and why patients must be involved in the digitalising of their own records. Tina gives her perspective as a clinician but also her personal perspective as a patient who has had stigmatising material propagated throughout the system while important clinical information was excluded from her record.- Posted
- 1 comment
-
- (and 4 more)
-
Content ArticlePatient advocate and healthcare communications consultant, Tambre Leighn, shares her poster, Ask Me!: Transforming Patient Communication to Improve Enrollment & Adherence in Clinical Trials and Cancer Care, presented at the American Association of Cancer Researchers conference.
-
Content Article
Patient safety guide (NHS Northern Care Alliance)
Patient Safety Learning posted an article in Patient-centred care
Do you ever forget what you want to ask when you meet with a healthcare professional? Do you leave your appointment without answers to all your questions? To avoid this, the guide will help you to prepare, by giving you advice on what you might want think about before your consultation. You can also use it as a reminder or prompt and it is handy for making notes after your consultation. The main aim of this guide is to empower you, by taking control of your healthcare (or the healthcare of the person you look after), in partnership with your healthcare professional. Preparing information before your consultation and taking it with you will make sure the time you spend with your doctor, pharmacist or practice nurse is used as effectively as possible. -
Content ArticleYour Care Needs You! is designed to empower, encourage and support patients and their families to know more and do more in hospital, so that people have the skills and confidence to manage their own health and care more safely when they return home. These are resources to guide patients and families through the key things to do in hospital to prepare for living at home again.
-
Content ArticleSofia Mettler, MD, describes the day when the electronic medical records (EMR) system at her hospital failed and the impact this had on clinical decision making. She highlights that the downtime forced doctors across the hospital to speak with patients about their condition and symptoms, and to collaborate with the nurses who had been monitoring them all night. It also made her realise that the many test results she was used to referencing for every patient were not all necessary to make clinical decisions. She reflects, "The EMR downtime made me realise that while the system seems to make our clinical routine convenient, it may not result in increased efficiency or better patient care."
-
Content ArticleThe National Academies of Sciences, Engineering, and Medicine (NASEM) report Improving Diagnosis in Health Care calls for healthcare professionals to engage patients in diagnostic decision making. Patient engagement refers to the concept of patients being actively involved in their healthcare, including but not limited to engaging with medical providers and the health system in diagnosis, treatment, and overall disease management decisions. The emergency department (ED) presents unique challenges to engage patients in the diagnostic process. Patients evaluated in the ED typically have no prior relationship with the care team. Engagement is further challenged in the unpredictable, chaotic environment where clinicians operate in time-constrained situations and care for multiple patients simultaneously. Finally, patients presenting to the ED may be critically ill, emotionally distressed, intoxicated, or otherwise unable to fully participate in their own care. Health information technology (IT) is increasingly used to promote patient engagement by enhancing patient-provider communication, ensuring shared decision making, and enabling positive behavioural changes. Health IT tools such as electronic patient portals, mobile text messaging, health apps, and recent advancements in virtual environments offer new opportunities for patient engagement in the ED. This Agency for Healthcare Research and Quality (AHRQ) brief reviews the current state of health IT-based methods for engaging patients in the diagnostic process in the ED and outlines opportunities for further development.
-
Content ArticleSafety-netting advice is information shared with a patient or their carer to help them identify the need to seek further help if their condition fails to improve or changes. In some instances, it is mandatory for pharmacists to give patients safety-netting advice. This article in the Pharmaceutical Journal provides advice for pharmacists on how they can provide this advice clearly and appropriately. The article explains the importance of safety-netting and when it is appropriate, describes elements to include when safety-netting and provides advice on how to adequately document advice given.
-
Content ArticleAccurate and accessible medical information is key to successful patient-centred care, which can be supported by the availability of easy-to-understand summaries of articles published in medical journals. In this short Lancet article, Mohamed Seghier of Khalifa University of Science and Technology, makes the case for plain language summaries that enable clinically useful research to be understood by the general public.
-
News Article
Period trackers 'coercing' women into sharing risky information
Clive Flashman posted a news article in News
Female health monitoring apps are putting women at risk by "coercing" them into disclosing - and then poorly handling - highly sensitive data, according to new research. The study examined the privacy policies and data safety labels of 20 of the most popular of these kind of apps, which are commonly used to help women conceive. It found a host of poor data-management practices, including some apps not having a delete function, even for highly personal information such as menstrual cycles and miscarriages. Its authors say it is the most extensive evaluation its kind completed to date. They say the apps are used by hundreds of millions of people. The BBC has contacted a number of app providers - none have responded to a request for comment. "While female health apps are vital to the management of women’s health worldwide, their benefits are currently being undermined by privacy and safety issues," the lead author of the study, Dr Ruba Abu-Salma, from King's College London, told the BBC. Other key findings from the study include: 35% of apps claimed not to share personal data with third parties but contradicted this in their privacy policies 50% assured users that health data would not be shared with advertisers, but were ambiguous about other data collected 45% of privacy policies denied responsibility for third-party practices, despite claiming to vet them. Female-focused technology has boomed in recent years, with the market expected to exceed $75 billion by 2025. But Lisa Malki, another of the study's authors, said the industry needed to get better at protecting the women whose data it was using. Read full article on the BBC here. -
Content ArticleThis video provides an introduction to Sheffield Health and Social Care NHS Foundation Trust's (SHSCFT's) Patient and Carer Race Equality Framework (PCREF). The PCREF aims to help the Trust's staff and communities understand how to have sensitive conversations with patients and carers and to get better information from them. This will mean the Trust is more culturally aware and able to offer culturally appropriate care by understanding the barriers ethnic minority communities face in getting healthcare services for diagnosis and treatment.
-
Content Article
On 17 and 18 April 2024, government ministers, high-level representatives and health experts from all over the world gathered in Santiago, Chile for the Sixth Global Ministerial Summit on Patient Safety. In this long-read article, Patient Safety Learning’s Chief Executive Helen Hughes reflects on the key themes and issues discussed at the event. -
Content ArticleSheffield Health and Social Care NHS Foundation Trust's (SHSCFT's) Patient and Carer Race Equality Framework (PCREF) aims to help the Trust's staff and communities understand how to have sensitive conversations with patients and carers and to get better information from them. This will mean the Trust is more culturally aware and able to offer culturally appropriate care by understanding the barriers ethnic minority communities face in getting healthcare services for diagnosis and treatment. This video was produced by SHSCFT to guide staff in having conversations about collecting information on ethnicity from patients and carers.
-
Content ArticleSheffield Health and Social Care NHS Foundation Trust's (SHSCFT's) Patient and Carer Race Equality Framework (PCREF) aims to help the Trust's staff and communities understand how to have sensitive conversations with patients and carers and to get better information from them. This will mean the Trust is more culturally aware and able to offer culturally appropriate care by understanding the barriers ethnic minority communities face in getting healthcare services for diagnosis and treatment. This video was produced by SHSCFT to help staff, service users and their families understand the importance of sharing information around their ethnicity and protected characteristics.
-
Content ArticleLots of helpful information about health and medical science is available on the internet, often found via search engines and social media. However, some online health information is false and misleading—this is called health misinformation. Health misinformation can be harmful and can be hard to recognise, as the information may appear to come from an official or safe source. This article by US-based doctor Kelly Johnson-Arbor provides advice on how to recognise health misinformation, where misinformation comes from and why it can be harmful. The author goes on to explain ways to look for reliable health information.
-
Content ArticleThe Information Commissioner’s Office (ICO) is supporting health and social care organisations to ensure they are being transparent with people about how their personal information is being used. The UK data protection regulator has today published new guidance to provide regulatory certainty on how these organisations should keep people properly informed. The health and social care sectors routinely handle sensitive information about the most intimate aspects of someone’s health, which is provided in confidence to trusted practitioners. Under data protection law, people have a right to know what is happening to their personal information, which is particularly important when accessing vital services. The guidance will help organisations to understand the definition of transparency and assess appropriate levels of transparency, as well as providing practical steps to developing effective transparency information.
-
Content Article
Lost in the system? NHS referrals
Patient_Safety_Learning posted an article in Patient engagement
Demos is Britain's leading cross-party think tank, working on different policy areas, from improving public services to building a more collaborative democracy. In this blog, Miriam Levin, Director of Participatory Programmes at Demos, tells us about their recent report, “I love the NHS but…”: Preventing needless harms caused by poor communication in the NHS. She argues there is an urgent need to improve NHS communications for patients and staff if we are to prevent people falling through the gaps and suffering worse health outcomes. Miriam highlights key issues with NHS referrals, disjointed computer systems and gaps in patient information, and offers some potential solutions.- Posted
- 6 comments
-
1
-
- (and 2 more)
-
EventuntilIn the context of a multimodal improvement strategy, WHO highlights the importance of training of health workers for sustainable improvement in infection prevention and control (IPC), including hand hygiene. Many countries are demonstrating strong engagement and advancements in scaling-up infection prevention and control (IPC) strategies and actions, but overall, the progress is slow, and gains are at risk. In multiple WHO surveys for example, training and education was the weakest component of IPC programmes around the world both at the national and facility level. With a global workforce of 65 million health workers, this year's campaign focus on training and education and taking action on, for example, hand hygiene can help save lives. Objectives To describe the evidence for the value of IPC and hand hygiene education and training. To outline WHHD 2024 resources and activities. To introduce new products impacting IPC education and training. To promote a shared understanding that IPC education and training should be in place for all health workers to reduce the risk of HAI and AMR, including winners of the WHHD case study submissions. Register
-
Content ArticleThis leaflet produced by East London NHS Foundation Trust (ELFT) explains the Patient Safety Incident Response Framework (PSIRF) to patients and families, outlining the aims of PSIRF and what they can expect from the process.
-
Content ArticleThis Medscape article looks at misconceptions about the impact of diet on cancer progression that are being spread on social media platforms such as TikTok. Examples of these ideas include the idea that you can 'starve' cancer by cutting out carbohydrates, or that an alkaline diet will stop cancer by neutralising the acid environment around a tumour. The author, John Kerr, asks whether there should be a rallying call for cancer health professionals to do more to "push these scientifically illiterate concepts away." He suggests, "Rather than just shrugging our shoulders, perhaps we should be thinking more about it?"
-
Content ArticleNottingham University Hospitals Trust has produced a leaflet for pregnant people who have experienced vaginal bleeding in later pregnancy. The leaflet aims to give women and families more information about possible causes of bleeding and recommendations that might be made for changes in pregnancy care. The leaflet has been produced in partnership with the parents of baby Quinn Parker, who tragically died in July 2021 after suffering oxygen starvation in the womb.
