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Showing results for tags 'Patient engagement'.
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Content ArticleIn the dynamic landscape of healthcare, the unexpected deterioration of a hospital patient presents formidable challenges for medical professionals and families alike. It is during these critical moments that the concept of patient rescue becomes profoundly significant. Families, empowered with knowledge and effective communication strategies, play a pivotal role alongside healthcare providers in advocating for their loved ones and contributing to the success of rescue efforts. Watch this video from the World Patients Alliance to enhance your skills and confidence in advocating for patients' needs.
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Content ArticleClive Flashman, Patient Safety Learning's Chief Digital Officer, presented at a Health Tech Alliance meeting to innovators on how to engage with patients to improve the safety of digital health innovation. Clive addressed the challenges in patient engagement such as accessibility, interoperability, safety standards and privacy and data use. The presentation slides from the meeting can be downloaded from the attachment below.
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Content Article
NHS England: Patient initiated follow-up
Patient Safety Learning posted an article in Patient-centred care
To give patients and their carers the flexibility to arrange their follow-up appointments as and when they need them, NHS England is supporting providers to roll out patient initiated follow-up (PIFU). PIFU is when a patient initiates an appointment when they need one, based on their symptoms and individual circumstances. It can be used with patients with long or short-term conditions in a broad range of specialties including dermatology, rheumatology and cancer. PIFU is not a new concept, and commonly goes by a number of other names including open access follow-up, patient led follow-up, patient triggered follow-up, patient initiated appointments, supported self-managed follow-up, self-managed follow-up, see on symptom, open appointments, open self-referral appointments or patient-activated care. The approach helps empower patients to manage their own condition and plays a key role in enabling shared decision making and supported self-management in line with the personalised care agenda. -
Content ArticleThe combined pituitary clinic (CPC) at the Royal Victoria Infirmary is a unique ‘hybrid’ clinic that enables patients to attend a multi-professional clinic that mirrors that of a multidisciplinary team. Patients have the opportunity to interact with all members of the MDT, provide their personal values and preferences and discuss treatment options. Interestingly the professional viewpoint on this topic has been well characterised in the literature, however the patient experience and participation in an MDT setting has not been explored for any cancer. The CPC provides an exclusive and timely opportunity to characterise the patient response to an MDT-like setting. This PowerPoint slide (link below) explains more about the project and the findings.
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Content ArticleHow are community groups bridging some of the gaps between Black mothers and health and care services? What can the health and care system learn in response? Siva Anandaciva speaks to Amanda Smith, founder and Chief Executive of Maternity Engagement Action CIC, Benash Nazmeen, Professor of Midwifery and co-founder and co-director of the Association of South Asian Midwives CIC, and Chrissy Brown, founder and Chief Executive of the Motivational Mums Club CIC, to find out.
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Content ArticleUse of artificial intelligence (AI) in healthcare is on the rise. Bodies including UK Governments, the National Institute for Health and Care Research and the NHS AI Lab are all investing in developing and deploying the technology. The Patient Information Forum (PIF) is an independent UK membership body for people working in health information and support. Developed in collaboration with PIF’s AI working group, this position statement aims to help members understand the AI landscape and how to manage it.
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Taking persistent physical symptoms seriously (15 June 2024)
Patient-Safety-Learning posted an article in Diagnosis
Persistent physical symptoms (PPS) are distressing physical complaints lasting several months or more without a clear cause. They are very common—but complex—and can be overwhelming for patients and healthcare professionals. PPS can have a devastating effect on mental health and cause distress for patients when they are not believed. This Lancet editorial looks at the increasing knowledge we have of the risk factors and mechanisms involved in PPS and what this means for patient care. It looks at recent research studies and models of care designed specifically for dealing with PSS. -
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In this blog, patient advocate and healthcare communications consultant, Tambre Leighn, summarises her poster, Ask Me! Transforming Patient Communication to Improve Enrolment & Adherence in Clinical Trials and Cancer Care, presented at this year's American Association of Cancer Researchers conference. Tambre discusses how effective communication is essential for ensuring patient safety in clinical trials and cancer care, and why poor communication can lead to negative outcomes. She shares her strategies to improve patient safety through communication. -
Content ArticleSelf-advocacy is an individual's ability to communicate their own needs and is an important skill for patients. However, medical self-advocacy can be challenging, especially when there is a power imbalance between people in positions of authority and patients, who are often in a more vulnerable position. This power imbalance can be even more difficult to navigate for children and young people. In this personal account, Hannah Eaton describes her experiences as a disabled young person attempting to get support for diagnoses relating to chronic illness and neurodivergence. She aims to highlight the difficulties faced by children and young people accessing healthcare. She also makes some suggestions to improve how much children are able to take part in their own healthcare care and the healthcare system as a whole.
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Anthony O’Connor is a co-production and lived experience consultant. In Anthony's first blog for Patient Safety Learning, he looked lived experience, its definition, its usage, and its impact. In this blog, he talks about the benefits of co-production and why it is essential to patient safety. Anthony gives examples of how co-production can be used more in healthcare and encourages everyone to develop their knowledge of co-production and start embedding it into their work. -
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I work primarily in the areas of lived experience and in co-production, and I strive to have both of these concepts better understood, and more effectively utilised wherever possible. Nowhere is this more important than the world of patient safety. In this first blog for Patient Safety Learning I will concentrate on lived experience, its definition, its usage, and its impact. -
Event
Engagement with patient & public networks
Patient Safety Learning posted an event in Community Calendar
untilThe Centre for Perioperative Care (CPOC) progresses a number of innovative and exciting collaborations with its patient facing partners since its origin in 2019. This webinar is designed to bring together lay and patient representation from both its Board and Advisory Group partners, as well as patient organisations and charities. The aim is to understand better the needs of patient and public engagement from a perioperative perspective. The webinar will include presentations from speakers investigating the Psychological and Behavioural science backgrounds of patients’ needs and wants, as well as patientvoices@RCOA. There will be an opportunity to develop these ideas in breakout groups to produce a consensus statement which CPOC will use to further develop the patient facing perioperative strategy. Considering the increasing waiting times that patients are having to process, while seeing their conditions potentially deteriorate, this is an opportunity to bring like-minded voices together to benefit patient outcomes within the UK. Further information -
Content ArticlePatient advocate and healthcare communications consultant, Tambre Leighn, shares her poster, Ask Me!: Transforming Patient Communication to Improve Enrollment & Adherence in Clinical Trials and Cancer Care, presented at the American Association of Cancer Researchers conference.
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Patient safety guide (NHS Northern Care Alliance)
Patient Safety Learning posted an article in Patient-centred care
Do you ever forget what you want to ask when you meet with a healthcare professional? Do you leave your appointment without answers to all your questions? To avoid this, the guide will help you to prepare, by giving you advice on what you might want think about before your consultation. You can also use it as a reminder or prompt and it is handy for making notes after your consultation. The main aim of this guide is to empower you, by taking control of your healthcare (or the healthcare of the person you look after), in partnership with your healthcare professional. Preparing information before your consultation and taking it with you will make sure the time you spend with your doctor, pharmacist or practice nurse is used as effectively as possible. -
Content ArticleOne year on from the launch of the Health Innovation Network's Chronic Pain Experience-Based Co-Design (EBCD) project, Natasha Callender, Senior Project Manager at the Health Innovation Network South London (HIN), and Natasha Curran, HIN Medical Director and Consultant in Pain Medicine share reflections on their learnings from working with people living with chronic pain.
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Content ArticlePatient safety policies increasingly encourage carer (i.e., family or friends) involvement in reducing health care–associated harm in hospital. Despite this, carer involvement in patient safety in practice is not well understood—especially from the carers’ perspective. The purpose of this article is to understand how carers of adult patients perceived and experienced their patient safety contributions in hospital. Constructivist grounded theory informed the data collection and analysis of in-depth interviews with 32 carers who had patient safety concerns in Australian hospitals. Results demonstrated carers engaged in the process of “patient-safety caring.” Patient-safety caring included three levels of intensity: low (“contributing without concern”), moderate (“being proactive about safety”), and high (“wrestling for control”). Carers who engaged at high intensity provided the patient with greater protection, but typically experienced negative consequences for themselves. Carers’ experiences of negative consequences from safety involvement need to be mitigated by practice approaches that value their contributions.
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Content ArticlePhil, Triangle of Care lived experience co-chair at Pennine Care NHS Foundation Trust, shares a short message about why involving carers in patient safety work and sharing expertise with carers is so important.
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Content ArticlePeople who have used health services are often invited to offer their expertise through research, service evaluation, giving patient experience talks or other forms of feedback. This is often referred to as Patient and Public Involvement (PPI). This guidance by Imperial College London and the National Institute for Health and Care Research (NIHR) is intended for healthcare professionals, staff who work in patient experience roles, healthcare organisations, researchers and others who interact with service users and their relatives who are giving insight and feedback through a PPI process. It has evolved from the lead author’s observations when contributing to PPI activities, and the recognition that more needs to be done to create a safe psychological environment to enable people to feel comfortable when contributing and to be involved without harm.
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Content ArticleYour Care Needs You! is designed to empower, encourage and support patients and their families to know more and do more in hospital, so that people have the skills and confidence to manage their own health and care more safely when they return home. These are resources to guide patients and families through the key things to do in hospital to prepare for living at home again.
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Content ArticleInvolving patients is a key premise of national and international policies on patient safety, which requires understanding how patients or carers want to be involved and developing resources to support this. This paper examines patients' and carers' views of being involved in patient safety in primary care and their views of potentially using a co-designed patient safety guide for primary care (PSG-PC) to foster both involvement and their safety. It found that involving patients and carers in patient safety needs a tailored and personalised approach that enables patients and carers to use resources like the PSG-PC routinely and helps challenge assumptions about their willingness and ability to be involved in patient safety. Doing so would raise awareness of opportunities to be involved in safety in line with personal preference.
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Content ArticlePatient feedback on diagnostic errors may improve the quality and safety of care. This analysis examined patient feedback on what went well with the diagnostic process. Results mirrored those of studies on diagnostic errors, stating feeling heard, appreciated, and timely communication contributed to a good diagnostic process.
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Content ArticleSofia Mettler, MD, describes the day when the electronic medical records (EMR) system at her hospital failed and the impact this had on clinical decision making. She highlights that the downtime forced doctors across the hospital to speak with patients about their condition and symptoms, and to collaborate with the nurses who had been monitoring them all night. It also made her realise that the many test results she was used to referencing for every patient were not all necessary to make clinical decisions. She reflects, "The EMR downtime made me realise that while the system seems to make our clinical routine convenient, it may not result in increased efficiency or better patient care."
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Content Article
This is part of our series of Patient Safety Spotlight interviews, where we talk to people working for patient safety about their role and what motivates them. Making Families Count is an organisation that offers practical training based on lived experience to healthcare professionals. Rosi talks to us about how MFC training benefits patient safety and improves the way in which patients and families are involved in incident investigations. She explains how she came to be involved in MFC after the death of her son Nico and outlines the vital importance of seeing patient and family voices as equal to those of people working for healthcare organisations. -
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Tommy’s National Centre for Maternity Improvement
Patient Safety Learning posted an article in Maternity
In partnership with the Royal College of Obstetricians and Gynaecologists and the Royal College of Midwives, The Tommy’s National Centre for Maternity Improvement is working to prevent stillbirths and premature births across the UK. Our current method of assessing risk during pregnancy has remained unchanged since the 1970s, with midwives or doctors using a checklist to classify a woman as either ‘high’ risk or ‘low’ risk. The current system does not measure how high or low this risk is, and so does not allow for more personalised care. As a result, Tommy's National Centre for Maternity Improvement are creating The Tommy’s Pathway – an online medical tool that will help healthcare providers work out which pregnant women are most at risk of giving birth prematurely or of developing pregnancy complications that can lead to stillbirth. The Pathway will use information routinely gathered by midwives and doctors to provide a personalised risk score and treatment recommendations for every pregnant woman, ensuring that every woman receives the best support possible throughout pregnancy. The Pathway will also empower pregnant women to become more engaged in their own care. -
Content ArticleThe National Academies of Sciences, Engineering, and Medicine (NASEM) report Improving Diagnosis in Health Care calls for healthcare professionals to engage patients in diagnostic decision making. Patient engagement refers to the concept of patients being actively involved in their healthcare, including but not limited to engaging with medical providers and the health system in diagnosis, treatment, and overall disease management decisions. The emergency department (ED) presents unique challenges to engage patients in the diagnostic process. Patients evaluated in the ED typically have no prior relationship with the care team. Engagement is further challenged in the unpredictable, chaotic environment where clinicians operate in time-constrained situations and care for multiple patients simultaneously. Finally, patients presenting to the ED may be critically ill, emotionally distressed, intoxicated, or otherwise unable to fully participate in their own care. Health information technology (IT) is increasingly used to promote patient engagement by enhancing patient-provider communication, ensuring shared decision making, and enabling positive behavioural changes. Health IT tools such as electronic patient portals, mobile text messaging, health apps, and recent advancements in virtual environments offer new opportunities for patient engagement in the ED. This Agency for Healthcare Research and Quality (AHRQ) brief reviews the current state of health IT-based methods for engaging patients in the diagnostic process in the ED and outlines opportunities for further development.
